World AIDS Day and the bliss of ignorance in youth.

Today being December 1 is of course, World AIDS Day.  I went to the Library at 10 this morning and hung my Memorial Quilt display with the help of John Mark, Linda, Julie and another lady who I forget her name.  Then I went to lunch, Bought goose food, stopped and visited my banker lady, came home, fell asleep in the chair and woke up to a whole new world.
The grand daughter came after school so she could go to the Observance this evening with me.  I forgot the cookies.  I forgot the camera. I forgot my water.  So I was pretty sure I was on a losing streak.  The program was fairly simple and went well.  Linda was the emcee. Joanne Grove presented the statistics which amazed me even now.  I must verify them before I report them, just cause that is what I do. Eddie Three Eagles told how AIDS affects the Native Americans.  And he remembered me from last year. I presented my two new panels and then they were blessed by Rev. Lamb. John Mark then gave his story putting a face on AIDS.  He has been positive for 27 years; over half of his life.  Then we all gave names to people who have passed and wrote their names on a red ribbon and hung them on the tree.  the ice cream cake donated by Dairy Queen was by that time starting to melt.  They should have opened a window and it would have frozen right back up.
The plan was to then go down to the first floor foyer and pick up a candle and have it lit and proceed outside.  Deven and I were inside and I was in no hurry to go out in the 1 degree weather.  Two young teenagers came in past the candle lighters and stopped near us.  The following conversation ensued.
Girl: I wonder why they are lighting those candles.
Me: It is in observance of World AIDS Day.
Girl: What is AIDS Day?
Boy:  That is that disease you hear about.  AIDS!
Girl: Oh, wow!  They are celebrating STD's?
Boy:  No, I don't think so.  I think they are not happy about it.
Me:  We do it in rememberance of all the people who have died.  But listen, we were up on the fourth floor and there is a lot of literature about it up there.  Also an ice cream cake that needs eaten.
Boy:  Gee, thanks. 
And they got in the elevator for the fourth floor. Deven and I looked at each other in amazement.  She is 14 and very wise for her years.  I was amazed that the two on their way up knew what STD's were.  I never figured that out until I was 40 years old.
But World AIDS Day is over for another year and my camera is hanging on the newel behind me where I hung it this morning so I would not forget it.  My quilts will be hanging on the fourth floor for a week and then I will go pick them up.  Guess they are on loan to the Library.  I am rather happy that they will be there so people can see and wonder what they are for.  So I put up a short paper on what they were and why they were there.
Now I am tired.  And it is very cold.  So I am going to nuke my rice bag and my corn bag and call it a night.  And I am going to throw another blanket on the bed.  I love to crawl in a cold bed and pull the covers way up, but I have the hot thing down there on my feet and off to sleep I go.  Life is good.

Hey, I may be on schedule with WAD!

There is my little slide show.  I went down last night and actually started the AIDS Ribbons.  See on World AIDS Day, which will be December 1 at the Hoag Library, I have much to do.  First I had to make 2 new panels for friends who have passed this last year.  I got that done on Saturday.  They will be dedicated at our program by Rev Jeannine Lamb and Rev. Mark Hild.  That is always a very solemn occasion.
I also need to make cookies for the reception and gathering time.  I have a freezer full of those already.  See PFLAG gives out goodie bags to all the clients at the SCAP Christmas party.  So since we need 36 bags this year and have very few bakers, I will do my share.
The last thing on the agenda is our candlelight service.  This is when we dedicate a ribbon to someone who has died from AIDS.  I have 50 made and will probably do another 25 or so.  Already bought the sharpee to write the names with .  We then take them out side to a tree and hang them on as we call out thier name.  Some times we tell a  little about them.
Eddie Three Eagles and his group will sanctify the tree and grounds as per native traditions.  Now this year is special, or at least to me it is.  The Pueblo AIDS Memorial Quilt, which is my personal project, will hang on the 4th floor of the Library for one full week.  I need to write up a thing on what this is and how it came into fruition.
This will once more be an all day event.  Not at the Library, per se, but both colleges will be doing testing.  That is always a busy time.  Last year we only did the PCC campus and we had no positive results.  In this case, positive is not good.  We are testing for the HIV and positive means you have it.  So we want negative.  We are hoping for the same thing this year.
So this is what I been up to.  Hope to see some of you at the Library.  We are shooting for a 5:45 P M start.  See you there!

And now, the candle light service for World AIDS Day.

This is our tree all decorated on December 1, 2010.  The red ribbons each have at least one name of someone who has been claimed by AIDS.  We were inside for the program and when it was over we picked up a candle and wrote a name on a ribbon and processed out to the amphitheater.  When we got outside the candles were lit, because there was some sort of something in balloons and the community college did not want us waving flamesaround. 

                                Up on top there is my friend Diane from the Indian Nation who is also the nurse at the Pueblo Community Health Center who holds sway at the Collaborative Clinic.  She is in her native dress and the woman is a real beauty.  And want to know something else?  She has a twin sister so if you happen to have access to this album you will see a close up of her also.  If you look back there behind Eddie Three Eagles and to the right of the drummer you can see them.  Aren't they cute?

So, anyway, after we got outside, we hung our ribbons on the tree and said aloud the names that we were placing there.  I only did two names this year.  I get tired of putting my friends on a tree.  I guess I am selfish that way and over the years my list has gotten so long that it is redundant.  I always do Mark though, because he was such a vital part of my life for so many years.

After the candles were lit and the ribbons hung, and the names said, Eddie Three Eagles purified the ground and then blessed the tree.  He then sang Amazing Grace in his native tongue and then we joined him as he sang it again.  That was  so moving! 

When the whole thing was over everyone went around in a collapsing circle.  Another moving thing.  When we went inside we lingered just long enough to pass out the hugs and Eddie Three Eagles gave me a peck on the cheek!  Hugs from everyone and home after a very long and rewarding day.

December 1 will come again!  It always does and it will always be World AIDS Day.  Next year I suggest you find a candlelight observance some where near you and attend.  There will be one, of that I am sure because the world is full of Lou's and John's and Erik's, and Annalees.  Call your Art Center, or your Health Department and if no one can help you do it yourself.  Our first observance was at our Arts Center outside in the freezing cold, but we were there and for this disease to ever be overcome it has to be out there and it has to be talked about.  People have to be educated and it starts with the young ones. 

Our testing at the college turned up not one single case of HIV.  Do you think that was an accident?

Along the Malecón: Florida lawmaker pressures Hungary on Cuba

Along the Malecón: Florida lawmaker pressures Hungary on Cuba

I know you were expecting something else here today, but I just caught this link and I find it very interesting. I know from reading my stats that there are a lot of you out there interested in cuba. My friend Tracey Eaton writes a very clear view of what goes on in Cuba on a political as well as a personal level. On his sight there is also a link to the daily mini blog in the New York Times.

If you go back to some of his older blogs you can see some of the most beautiful pictures of Cuban life.  That alone is worth the trip across cyberspace.

Check him out and we will get back to World AIDS Day a little later. And tell him Lou said "Hey!"

Johnson and Johnson isn't just baby products anymore!

You always thought Johnson and Johnson made baby products, didn't you?  Well just guess again!  These are two of the most prestigious people to walk through my life and I want to tell you about them.  Now you see there are three people there, so I will introduce you to them, starting on the left, because that is how it is always done and you know me, a stickler for protocol!

On the left is Merilou Johnson, MSW, MPA who I barely know. Her official title is Program Director Colorado AIDS Education Training Center.   I just met her Wednesday, so like a good little girl I thought I better figure this out quick!  I knew by the very virtue of her being here she was important, and right I was.  Those letter behind her name mean she is very educated in public service both on the social level and public administration.  See when you see an M like that it means Master and that is top of the line. Since I only met her briefly, I do not know her well, but I would dearly love to set and visit with her after researching her with my able Google toolbar.  This woman can tell us some tales I am sure and is a vital part of this continuing fight against this disease that I seem to have landed in the middle of for some reason.  To Merilou I say, "I would love to visit with you , but I was stuck at the tables.  Please forgive me for not being there."

The next lovely little creature in this little threesome is Annalee Beck, EIS Program Director at Pueblo Community Health Center.  EIS means Early Intervention Services.  Many years ago and I mean like maybe eight (?) this service was set up specifically for the HIV/AIDS community.  As I recall I was there for the first few initial meetings but that was just to whine about not having something for the clients. This town will do anything to shut me up when I start that.  I am so happy that bigger and brighter minds then mine prevailed and a program with Annalee at the helm and PCHC at her back and Dr. Johnson and Dr. Swartz beside her has brought first class health care to my friends.  There is also a most able staff there and I would be remiss to start naming names without a full list in front of me.  I only know JoAnne and Diane personally.  I will get that full slate and thank them properly in this tiny blog. Hats off to PCHC and all the little people!

And now we come to the love of my life, Dr. Steve Johnson, MD.  Isn't he the most handsome thing you ever laid eyes on in your whole life?  That little MD on the end of is name is so inadequate to describe this larger than life icon in the field of HIV/AIDS.  His official title is Professor & Director of Infectious Disease, University of Colorado.  This man is world reknowned for his work in this field and he was most instrumental in setting up and staffing our EIS Program. I know he comes down from Denver on a regular basis to meet with clients and he and Dr. Swartz confer on every aspect of client care. While I could go on all day about this man's accomplishments I know I would miss some and I do not want to do that!  What I want to do is tell you that this is one of the kindest, most caring men that God ever put on this earth and I thank him every day for sending Dr. Steve Johnson into my life, Mark's life and everyone in Pueblo, Colorado that is touched by this man's hand.  If there is ever a cure for this scourge on human life this man will be the first to know and it will be delivered to his people that same day.  Kinda like Moses bringing down the tablets!  I love you, man!

There you have it.  I know Pueblo is a backward little town, and we operate under the auspices of Colorado Springs offices and we get our funding through them.  Colorado Springs is big and we are little, but let me tell you this......We have had or EIS program eight years; Colorado Springs got theirs one and a half years ago.  Maybe they just didn't need one as bad as we did. 

These three angels are standing in front of the Pueblo AIDS Memorial Quilt.  I don't know if Colorado Springs has anything like this, but if Bill or Richard would get in touch with me I would be most happy to help them start one.  We have had ours since 1996 and it is a wonderful way for people to connect and express feelings.

Alrighty then!  Better get out of here before I fill up cyber space!  See you tomorrow for another little lesson in World AIDS Day 2010!

The testing part of World AIDS Day and a girl named Melissa.

As you know, December 1 was World AIDS Day, and we were off to do our thing at the Community College.  I promised a report, but this is one that is going to be made in about 4 entries as I want to try to do justice to each part.  Our focus this year was on testing.  Pueblo Community Health Center, Southern Colorado AIDS Project, and MPACT all had testing on site and it was free!  Now, you are going to be amazed at the changes in the world today.  Well, maybe you aren't, but I sure was.

First off, piercing through the eyebrows, lips, nose, eyelids and through the ears are all considered normal.  My thoughts on this is "If God wanted holes in my body he would have got out his drill!"   Now as to the dress code.  Remember how the boys used to wear their jeans baggy and way down their hips?  Now they wear what is called "Skinnies".  I know this because John told me. I digress!  Back to my purpose here on this blog.

So there were 8 long tables here in the foyer and we all advertised free HIV testing and our job was to reel in the students, talk to them about safe sex and the end goal was to get them tested!  I was absolutely amazed at our reception.  Here we have mere babes in arms being counseled on how to have safe sex by an old woman who would not have even said the word out loud 20 years ago.
They all left with a handful of condoms and a goodly portion of them headed upstairs to learn their fate.  That trip usually lasted about 20 minutes if they waited for results.  Then they would come by the table and poke out their finger with the band aid and I would give them a high five. If they did not want to go upstairs they were given a card for free testing at the Health Center.  Walk in.  Anytime.

I noticed one young girl visiting the tables and you know how you can just tell sometimes?  She finally came to my table.  I told her my spiel.  Free HIV testing and then I went a step further with her and engaged her in conversation.  I told her if she had sex she needed to be tested.  She told me she was pretty sure her boyfriend was faithful and I told her he probably was, but this is her body to take care of and protect.  "Take the test and if it comes back negative you can breathe a sigh of relief.  If it comes back positive then you got an early start and we will cross that bridge, but the unknown will do you in."  Only with this girl did I leave my table and walk her up the stairs and personally deliver her to "the room".  Of course I could not stay with her due to privacy issues.  So I went down to my table to wait.

The goal in testing is it is part of education.  There are people out there who think AIDS has been cured.  They think it is not the problem it used to be.  And it is definitely different.  People used to die of AIDS Related Complications or ARC.  But now we have high powered drugs that make the body toxic and in so doing suppress the viral load and build the immune system.  Now the cause of death is Heart Failure, Liver Failure, Cancer, Lymphoma, and any disease that can come in under the radar.  AIDS always wins in the end.  Always.

Along with the AIDS test comes counseling. Now this whole process takes about 30 minutes from the needle stick till you get your results.  Do you think anyone is going to leave that room and go have unprotected sex again without thinking about it? That would be just like setting there looking at a ticking time bomb and trying to figure out just when it is going to blow. Your whole life is now hanging on the word "if", the longest word in the English language.  I am pretty sure I would change a few habits I carried for years if I had thought about them a little more!

It seemed that waiting for Melissa to reappear was one of the longest waits of my life.  I had formed an instant bond with this little waif and I must confess I may have said a prayer or two inside my head that not our will but thine  be done.  I felt a personal connection to all the kids I sent upstairs, but it was just special with Melissa. I wanted them all to be alright, but especially this little girl with the sad eyes.

And my patience was rewarded after due time.  I knew when Melissa started down the stairs what the news was!  She was negative!  So I gave her a card for the Health Center testing with instructions to get that boyfriend in and get him tested or I would be paying him a visit.  Then I told her,  "I am going to write about you on my blog, but look, no pictures.  And I will change your name."  Then I gave her a card and I just want her to say this to her.....

"Melissa, it was wonderful to meet you yesterday.  You reflect the innocence of youth and the hope for the future.  It is women like you who hold the key to ending this epidemic that grows every year.  You can talk to your friends about safe sex and convince them that their bodies are theirs to protect and as women it is our duty.  AIDS is not gender specific, it is not a GAY disease and it respects no boundaries.  If your boyfriend thinks a condom is uncomfortable, what does he think full blown AIDS would be?  You can help me do this.  And you can have your friends talk to their friends and soon we will be an army of women marching shoulder to shoulder ...."

My God!  I am woman hear me roar!  I feel sooooo Helen Reddy!

In an ironical twist of fate there were in the neighborhood of 70 tests given yesterday and not one positive in the whole college!  To me that was absolutely amazing. This group of people that I thought was the party crowd, clothing optional, pass the bong turns out to be responsible citizens of society.  Well, I for one feel a little better about my future.

And I want to send a plea out to my Melissa and all the other Melissa's out there and the little gay guy and the macho football player and anyone else who will listen to me....I need you!  Southern Colorado AIDS Project needs you.  The Community Health Center needs you.  We need warm bodies to help us.  We are overwhelmed.  Linda Lorraine at SCAP particularly needs help answering the phone and always something to be done.  Do this.  See down below this where it says send a comment?  Send me a message.  If you do not want it published just say so and it will be our little secret.  If we keep talking we can conquer the world!

I do not remember who said this, but I remember it being said:

No man is an island....

P.S.  I give a social luncheon on the second Tuesday of every month at the SCAP office.  Everyone is welcome.  Come and meet some of the clients that eat with me.  They are wonderful people and this will put a face on this disease.  We even have a tiny baby to play with!  It starts at 11:30.  Oh, but I am skipping December because the Springs office caters that one for Christmas!  Well not skipping, but being lazy.  I will be there with the cookie bags from PFLAG.  Call me!  I am lonely!

World AIDS Day planning committee at work!

Here we are at Joe's Coffee Shop in the basement of Pueblo Community College.  This is our first year to  be on the campus at PCC and I must say it has been a real treat!  They have been most accommodating and the friendliest  people I have come across in a very long time.  Why it just makes me want to go back to school!

First I have to tell you who all these people are and if I knew I would sure share that with you.  Not really.  I did not get my little release like I need to go around the table naming names, so I am just going to point out a few.  Needless to say they are all friends of mine !  OK, top picture.  See that kid on the right with the dark shirt and glasses?  That is John.  He is on the National Quality Center Consumer Advisory Council Steering Committee.  Quite a prestigious fellow.  We just went and had Chinese before we came so he is probably dozing off, but more about him in another post.  The empty chair is mine.  The two ladies on the left are with PCHC. One is our co leader along with John.

Bottom picture on the right is Eric.  We used to go to church together, but I changed.  The lady with her back to me is one of the PCC Staff who is most kind.  Another one is behind her head.  The lady on the left is with Pueblo City/County Health Department.  So there you have a loose accounting of the people it takes to plan an event of this magnitude and actually pull it off with any degree of decorum.  Tomorrow is our test!!

Events will start at 9:00 AM and run until 7:30 PM.  Pueblo Community Health Center will offer free testing the first part of the day and then SCAP and IMPACT the rest of the day.  Dr. Steve Johnson, MD Professor & Director of Infectious  Disease, University of Colorado, will be our Keynote Speaker.  Our guest speaker will be Merilou Johnson, MSW, MPA, Program Director Colorado AIDS Education Training Center.  They are no relation, just share a last name. 

I have not met Merilou Johnson, but I have met Dr. Steve Johnson and can attest that he is one of the kindest and most intelligent men I have had the good fortune to visit with in my time in this business.  He and Dr. Swartz were Mark's doctors for the last several years of his life, so I had the good fortune to visit with them both every month.  They are both very caring men which is a necessity in this area of medicine.

Now for my far away friends, you should know that this is a coup!  I figure this is going to be the biggest WAD Commemoration to date in this fair city.  Right now I have to go finish Rick's panel or I will be standing there tomorrow night with egg all over my face and this whole table full of people glaring at me.  Not me, man.  I am looking forward to tomorrow and hope when I come home it is with a feeling of accomplishment!